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Rare Cancer Patient Stories

Includes rare benign, borderline, mixed cell tumors & cancers, and cancer procedures or treatment stories.
Please consider submitting your rare cancer or tumor story to us.

A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V  W  X  Y  Z

- A -

Acinic Cell Carcinoma

Adenoid Cystic Carcinoma of the Breast - Debbie's Story

Adenoid Cystic Carcinoma of the Breast - Mary's Story

Adenoid Cystic Carcinoma of the Breast - Sharon's Story

Adenoid Cystic Carcinoma of the Breast - Diagnosis and Surgical Treatments

Adenoid Cystic Carcinoma of the Head & Neck

Adenoid Cystic Carcinoma - Intensity Modulated Radiation Therapy (IMRT)

Adenoid Cystic Carcinoma - Participating in a Clinical Trial

Adenocarcinoma - Appendiceal Mucinous

Adrenal Gland Cancer - pheochromocytoma (phaechromocytoma).

Anal Cancer - Squamous Cell Carcinoma - Marie-Jeanne's Story

Anal Cancer - Squamous Cell Carcinoma - personal journey.

Appendix Cancer

Apocrine Cancer of Unknown Primary

Atypical Carcinoid Syndrome

- B -

Bile Duct Cancer - Klatskin's Tumor

- C -

Carcinoid Syndrome - Atypical

Chemotherapy Hair Loss - Poem

Cholangiocarcinoma

Chondrosarcoma Of The Cricoid Cartilage

Clear Cell Sarcoma of the Foot

Clear Cell Sarcoma of the Hand

- D -

Desmoplastic Infantile Ganglioglioma (DIG)

Duodenal Cancer - Experimental Procedure

- E -

Epithelioid Hemangioendothelioma

Eye Cancer - Orbital Malignant Peripheral Nerve Sheath Tumor

- F -

Facial Prosthetic (Nose)

Family - 3 Rare Diseases

- G -

Germ Cell Tumor - Malignant Sacrococcygeal Teratoma Yolk Sac (endodermal sinus)

- H -

Hair Loss - Chemotherapy - Poem

Hemangioendothelioma - Epithelioid

Hemangiopericytoma - Meningeal - Intracranial

- I -

Intracranial Hemangiopericytoma - Meningeal

- J -

- K -

Klatskin's Tumor

- L -

- M -

Malignant Fibrous Histiocytoma - Sarcoma

Mastectomy - Phylloides - making the decision.

Meningeal Hemangiopericytoma - Intracranial

Mucinous Appendiceal Adenocarcinoma

- N -

Nose & Palate Squamous Cell Carcinoma

- O -

Orbital Malignant Peripheral Nerve Sheath Tumor - Eye Cancer

- P -

Pheochromocytoma (phaechromocytoma) - an adrenal gland cancer.

Phylloides Mastectomy - making the decision.

Phyllodes (phylloides) Tumor - Two Women With The Same Perspective

Primary Peritoneal Psammomacarcinoma

Prosthesis - Facial

- Q -

- R -

Rare Disease Family

Renal Cell Carcinoma - Sarcomatoid

Rhabdomyosarcoma - Prayers and Research

- S -

Sarcoma - Clear Cell of the Foot

Sarcoma - Malignant Fibrous Histioctyoma

Sarcomatoid Renal Cell Carcinoma

Small Intestine Cancer - Experimental Procedure

Spindle Epithelial Tumor With Thymus-Like Differentiation (SETTLE)

Squamous Cell Carcinoma - Anal - Marie-Jeanne's Story

Squamous Cell Carcinoma Anal Cancer - personal journey.

Squamous Cell Carcinoma - Nose & Palate

- T -

Testicular Cancer

- U -

- V -

- W -

Whipple Procedure

Whipple Procedure - Duodenal Cancer

- X -

- Y -

- Z -